Caring Voice Coalition will be closed Monday, May 29 in observance of Memorial day.
We will reopen on Tuesday, May 30 at 9a.m. ET.
James Rock, Chairman of the Board
James Rock is the founder of Rock & Associates, a consumer products broker. Rock & Associates represented products to national and regional stores for 35 years, additionally developing a dedicated sales force in California and Northern Nevada. He retired in 2014.
Since the early 2000s, Rock has been lobbying Congress for awareness and funding for idiopathic pulmonary fibrosis and other rare diseases. He holds a bachelor’s degree in business management from San Jose (Calif.) State University.
James Rock is a current, independent voting board member for 2017 and has served on the board of CVC since December 2014.
Cheryl Sullivan Staveley, Treasurer
Cheryl Sullivan Staveley is a leading advocate and educator for Huntington’s disease (HD). She runs two HD support groups and has presented at conferences across the country. For five years she served as an HD Ambassador, sharing her family’s personal story of living and dealing with the disease. She was the recipient of the Huntington’s Disease Society of America’s 2012 Giving A Voice to HD Award and was named Volunteer of The Year in 2009.
Staveley attended Boston College School of Nursing and graduated from Lowell (Mass.) General Hospital, School of Nursing.
Cheryl Staveley is a current, independent voting board member for 2017 and has served on the board of CVC since July 2015.
Tracy Downing, Secretary
Tracy Downing serves as an attorney for the U.S. Department of Veterans Affairs (VA) in Nashville, Tenn., where he works on federal government contract issues dealing primarily with health care construction, services (including home oxygen and transplants), and supplies (including pharmaceuticals). Downing is admitted before the U.S. Supreme Court, the Supreme Court of New Jersey, and the U.S. District Court for the District of New Jersey. Before coming to VA, he was a contracting officer for the Bureau of Indian Affairs in their Reston, Va., office.
In addition to his law degree, Downing has earned a bachelor’s degree in political science and a master’s degree in public policy.
Tracy Downing is a current, independent voting board member for 2017 and has served on the board of CVC since January 2006.
Pamela Harris, Director
Pamela Harris knows firsthand the emotional, physical and financial challenges that many face when fighting a serious illness. As a cancer survivor, she has not only been a patient herself, but is also a certified grief counselor. She has walked alongside and in the shoes of patients and families who face an uncertain future. Motivated by these experiences, she has dedicated her life to empowering those who often feel lost, alone and without hope, by helping them navigate their own paths toward managing and continually improving their own health care.
Harris has more than 25 years of management experience, including a particular focus on addressing challenges and opportunities associated with access to care. She developed numerous patient access programs for the uninsured and underinsured patient communities.
Harris attended Harcum College in Pennsylvania. She is a longstanding member of both the Society for Human Resource Management and the Society of Corporate Compliance and Ethics.
Pamela Harris is a current, independent voting board member for 2017 and has served on the board of CVC since June 2003.
Bruce Packett, Director
Bruce Packett is the deputy executive director at the American Academy of HIV Medicine. Bruce has served with the Academy since January 2005, previously working in public policy, program management and federal grants. As a private consultant, Packett currently advises a major accredited, post-graduate institution on development and fundraising activities.
For undergrad, Packett studied English language and literature at the University of Maryland in College Park and has been active in continuing education and post-grad work in the humanities. He is also a trained, part-time musician.
Bruce Packett is a current, independent voting board member for 2017 and has served on the board of CVC since December 2014.
Gregory Smiley, Director
Gregory Smiley is the president, CEO of Caring Voice Coalition. Previously, he served as an advisor, based in South Africa, for the United Nations Program on HIV/AIDS, where he worked to build the capacity of 21 countries in Eastern and Southern Africa to respond to HIV. A graduate of both Duke University in Durham, N.C., and George Washington University’s School of Public Health in Washington, D.C., Smiley’s prior public health experience includes clinical research at George Washington University, the Alpha-1 Association, the National Cancer Institute’s Cancer Information Service, and the Presidential Advisory Council on HIV/AIDS.
Gregory Smiley is a current, non-voting board member for 2017 and has served on the board of CVC since February 2005.