Founded in 2003, Caring Voice Coalition was formalized to meet the unmet needs among the orphan disease population.
Sensing these unmet needs for people with rare, chronic or life-threatening illnesses, co-founder Pam Harris says Caring Voice Coalition evolved organically into the national 501(c)(3) nonprofit, charitable organization it is today.
“We recognized that the needs of a very select niche of people were not being fully met,” Pam says. “We started Caring Voice as a way to assist and help improve the lives of people with orphan and ultra-orphan diseases.”
Caring Voice Coalition possesses a unique and holistic approach to improving the lives of patients with chronic illnesses. From comprehensive outreach programs to services aimed at financial, emotional and educational support, Caring Voice Coalition has empowered and supported patients and their families, as well as the friends who care for them.
In addition to financial assistance, Caring Voice Coalition provides insurance education and counseling, and patient support programs for insured or underinsured patients.
“The biologic medications our patients require are expensive,” Pam says. “We’re not only here to help our patients financially, but to equip them with knowledge and education about their health insurance benefits and offer a steady support system to help guide them through their illness.”
The progression made through the years by Caring Voice Coalition, Pam says, is to be credited to the organization’s passionate, dedicated staff and board of directors.
“We’ve evolved to where we are today because of the quality and knowledge of our team,” Pam says. “When we look for employees, we look for team partners who have a passion for the work we do, a commitment to lifelong learning, and a dedication to go above and beyond every single day for our patients. That’s what makes Caring Voice as solid as it is. We are where we are today because of our people and their commitment to the CVC mission.”