Caring Voice Coalition, Inc. (CVC), a non-profit organization that provides financial assistance and insurance advocacy for persons with specific chronic illnesses, is pleased to announce a new program to assist patients diagnosed with Narcolepsy.
Narcolepsy is a chronic sleep disorder characterized by excessive daytime sleepiness (EDS) in which a person experiences extreme fatigue and possibly falls asleep at inappropriate times, such as work or at school. Narcoleptics usually experience disturbed nocturnal sleep and an abnormal daytime sleep pattern, which is often confused with insomnia. Narcolepsy is often associated with cataplexy, a sudden loss of muscle tone often triggered by intense emotions, sleep paralysis and hypnogogic hallucinations. While medications often help to manage the signs and symptoms of Narcolepsy, there is currently no cure.
This announcement represents an expansion of CVC’s current programs which include Pulmonary Hypertension; Alpha-1 Antitrypsin Deficiency; Idiopathic Pulmonary Fibrosis; Chronic Granulomatous Disease; Complex Partial Seizures; Infantile Spasms and Huntington’s disease.
“CVC is very excited to offer this new program,” said Samantha Harris, Vice President of CVC. “We strive to improve the lives of our patients every day and look forward to expanding our assistance to the Narcolepsy Community.”
Tim Robertson, Senior Director of Patient Services, adds, “The rising costs of healthcare prevents many patients diagnosed with chronic illnesses from beginning or remaining on therapy. CVC’s new program will provide financial support to help qualified patients afford the out of pocket costs related to their prescribed therapy for Narcolepsy.”
About the Caring Voice Coalition:
Caring Voice Coalition, Inc. (CVC)is a national 501(c)(3) non-profit, charitable organization established in 2003 to provide financial, insurance education and patient support to individuals diagnosed with specific chronic or life-threatening diseases. CVC seeks to empower these patients by providing comprehensive programs delivered through a holistic approach by a staff of knowledgeable, dedicated and caring individuals.