Caring Voice Coalition will be closed Monday, May 29 in observance of Memorial day.
We will reopen on Tuesday, May 30 at 9a.m. ET.
To help you take part in Huntington’s Disease (HD) Awareness Month in May—and all year long—we’ve compiled some ways to support HD awareness and those who have HD.
Keep growing your friendship.
Let any people in your life impacted by HD know a diagnosis doesn’t change your love for them by continuing to show up in the ways you always do—or even more!
Need some ideas?
Also check out these words of advice on friendship from 19 different people with chronic illness.
One difficult thing about any chronic illness but especially HD is facing misperceptions about some of the disease’s visible symptoms. By understanding as much as you can about the disease, you can avoid being accidentally hurtful.
Learning more about HD goes a long way in showing your friend how much you care.
Here are some places to start:
Spread the word.
Share the burden your friend and the HD community may feel to raise awareness or funds for HD. HDSA.org offers lots of opportunities to spread awareness, especially related to research fundraising and advocacy.
If you’d like more ideas on how to support someone with HD, try the family and friends support community, HD Lighthouse Families.
More on HD:
Did you enjoy this story? Email us your comments and questions and let's keep the conversation going. We encourage you to engage with us and other readers by following us on Facebook, Twitter, Instagram and Pinterest. Every person's journey is unique, and every perspective is valuable to us.