Board of Directors

James Rock, Chair of the Board

James Rock is the founder of Rock & Associates, a consumer products broker. Rock & Associates represented products to national and regional stores for 35 years, additionally developing a dedicated sales force in California and Northern Nevada. He retired in 2014.

Since the early 2000s, Rock has been educating policymakers and others around the need for additional awareness and resources for idiopathic pulmonary fibrosis and other rare diseases. He holds a bachelor’s degree in business management from San Jose (Calif.) State University.

James Rock is has served on the board of CVC since December 2014.

Learn more about James Rock here.



Cheryl Sullivan Staveley, Treasurer

Cheryl Sullivan Staveley is a leading advocate and educator for Huntington’s disease (HD). She runs two HD support groups and has presented at conferences across the country. For five years she served as an HD Ambassador, sharing her family’s personal story of living and dealing with the disease. She was the recipient of the Huntington’s Disease Society of America’s 2012 Giving A Voice to HD Award and was named Volunteer of The Year in 2009.

Staveley attended Boston College School of Nursing and graduated from Lowell (Mass.) General Hospital, School of Nursing.

Cheryl Staveley has served on the board of CVC since July 2015.

Learn more about Cheryl Sullivan Staveley here.


Tracy Downing, Secretary

Tracy Downing serves as an attorney for the U.S. Department of Veterans Affairs (VA) in Nashville, Tenn., where he works on federal government contract issues dealing primarily with health care construction, services (including home oxygen and transplants), and supplies (including pharmaceuticals). Downing is admitted before the U.S. Supreme Court, the Supreme Court of New Jersey, and the U.S. District Court for the District of New Jersey. Before coming to VA, he was a contracting officer for the Bureau of Indian Affairs in their Reston, Va., office.

In addition to his law degree, Downing has earned a bachelor’s degree in political science and a master’s degree in public policy.

Tracy Downing has served on the board of CVC since January 2006.

Learn more about Tracy Downing here.


Bruce Packett, Director

Bruce Packett is the deputy executive director at the American Academy of HIV Medicine. Bruce has served with the Academy since January 2005, previously working in public policy, program management and federal grants. As a private consultant, Packett currently advises a major accredited, post-graduate institution on development and fundraising activities.

For undergrad, Packett studied English language and literature at the University of Maryland in College Park and has been active in continuing education and post-grad work in the humanities. He is also a trained, part-time musician.

Bruce Packett has served on the board of CVC since December 2014.

Learn more about Bruce Packett here.


Gregory Smiley, Director

Gregory Smiley is the president, CEO of Caring Voice Coalition. Previously, he served as an advisor, based in South Africa, for the United Nations Program on HIV/AIDS, where he worked to build the capacity of 21 countries in Eastern and Southern Africa to respond to HIV. A graduate of both Duke University in Durham, N.C., and George Washington University’s School of Public Health in Washington, D.C., Smiley’s prior public health experience includes clinical research at George Washington University, the Alpha-1 Association, the National Cancer Institute’s Cancer Information Service, and the Presidential Advisory Council on HIV/AIDS.

Gregory Smiley has served on the board of CVC since February 2005.