In your words

Finding your joy

Mia Mojica shares how she finds freedom from the daily struggle of chronic illness through support networks and creative healing practices.  Everybody learns from their…

In your words: Outshining LGS

Julie Neal hopes her daughter Bailey’s experiences with Lennox-Gastaut syndrome will shed light on this severe form of childhood-onset epilepsy. Bailey was born in January…

In your words: Full of life

Born with Gaucher’s disease, Marie Babel explains how she never let the rare genetic disorder define her happiness or stop her from trying new things….

In your words: Overcoming obstacles

Kathleen Darrell finds purpose in her life with idiopathic pulmonary hypertension and idiopathic pulmonary fibrosis. I have idiopathic pulmonary arterial hypertension and idiopathic pulmonary fibrosis. I’ve been…