We share many courageous stories of Life with Disease. Let us help you share yours. Continue reading
Posted in Featured, Supported Diseases, Uncategorized | Tagged Alpha 1, Contact Us, Huntington's, Infantile Spasms, narcolepsy, PF, PH | Leave a commentThe first thing that she noticed was Justin’s low weight. Then he had his first seizure. Continue reading
Posted in Featured, Supported Diseases, Uncategorized | Tagged Epilepsy, Infantile Spasms | Leave a commentMeghan was 2 when her father was diagnosed with Huntington’s Disease. She was diagnosed at 19. Continue reading
Posted in Featured, Supported Diseases, Uncategorized | Tagged Huntington's Disease | Leave a comment“Watch This!” Does that phrase scare you as a parent? Imagine hearing that when your child has a clotting disorder. Continue reading
Posted in Featured, Supported Diseases | Tagged clotting disorder, Congenital Factor XIII Deficiency | Leave a commentJoyce was still a child when she knew that something was wrong. One person’s life with Narcolepsy. Continue reading
Posted in Diseases, Featured, Supported Diseases | Tagged narcolepsy, Narcolepsy Network | 7 Comments ← Previous post