Memorial Day

Caring Voice Coalition will be closed Monday, May 29 in observance of Memorial day.
We will reopen on Tuesday, May 30 at 9a.m. ET.

Category Archives: Featured

Featured Posts for the Slider

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A big annoucement from the president’s office

Posted on by Charlie

Caring Voice Coalition Co-founder and President Pam Harris has announced her retirement. She reflects on the last 15 years and introduces Greg Smiley, the board member who will take her…

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A new look for our magazine

Posted on by Charlie

Your Community magazine reading experience is new and improved—no matter your device. Community, Caring Voice Coalition’s quarterly magazine for patients, caregivers, health professionals and advocates, released its first issue of 2017…

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Making tough medical decisions with chronic illness

Posted on by Kelli Yoder

Living with a chronic illness means making regular and sometimes tough medical decisions. While some conditions require a clear treatment plan with no alternative options, other times your doctor will…

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Cooking with chronic illness: Four trends to try

Posted on by Kelli Yoder

When you have a chronic illness, cooking or thinking about cooking often requires more energy than you can muster. Yet making sure you eat balanced and healthy meals is all…

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Great podcasts for chronic illness

Posted on by Kelli Yoder
podcasts

Podcasts are a largely untapped resource for most people—but they could be especially useful to people with chronic illness. They’re a great option when you don’t have a lot of…

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15 encouraging quotes for your chronic illness journey

Posted on by CVCeditor

Healing “These pains you feel are messengers. Listen to them.” –Rumi, The Essential Rumi   “Some people see scars, and it is wounding they remember. To me they are proof…

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Share your rare disease story

Posted on by Kelli Yoder

Telling your rare disease story can positively impact so many aspects of a journey often fraught with anxiety. You can simultaneously raise awareness for your condition while connecting with a…

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Morning routine with chronic illness

Posted on by Kelli Yoder

Chronic illness can be a bit of a roller coaster. Many people talk about having times of flare ups followed by times of relative wellness. But according to research, establishing healthy routines…

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Prepared patient checklist

Posted on by CVCeditor

When living with chronic illness, especially a rare and life-threatening one, doctor visits are frequent and part of the routine. To be your best advocate, you must prepare for your…

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Raising awareness for chronic illness from home

Posted on by Kelli Yoder

If you have a chronic illness, you know just how important it is to help more people understand how common and life-changing long-term sickness is. But you also might not…

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Close Up: Nellie Capehart

Posted on by CVCeditor

I have been married for close to six years, to a loving and supportive husband and we have two bright and beautiful little girls under the age of 4 who…

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At a glance: Factor XIII

Posted on by CVCeditor

The body makes 13 blood-clotting factors and if any are deficient, blood doesn’t clot properly and a bleeding disorder results. The Factor XIII protein stabilizes blood clot formation—without the protein,…

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Faith and hope in life with Phelan-McDermid syndrome

Posted on by Kelli Yoder

Jodi Frunzi’s 16-year-old son, Michael, loves making friends and talking on the phone. She describes his life with Phelan-McDermid syndrome. When our son Michael was 1 year old, doctors asked…

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A few simple ways to practice gratitude

Posted on by Kelli Yoder

Expressing or meditating on gratitude when you have a chronic illness can improve your wellbeing, according to a growing body of research. While it might not come easily or naturally,…

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Buckle up and keep going with HD

Posted on by Kelli Yoder

J. Daniel Miller was diagnosed with Huntington’s disease when he was 21. No one in his family had heard of the disease. When I was in middle school, I was…

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