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2017 Assistance Reapplication Status

CVC's PH fund will reopen with a limited number of spaces on Friday, Dec. 9. Applications will be accepted (first-come, first-served) by phone or online beginning at 9 a.m. EST. At this time, CVC’s Narcolepsy and OH funds are fully allocated and we are not able to accept applications. Please be aware funds may reopen. Click here to check fund statuses.

Category Archives: Featured

Featured Posts for the Slider

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Four ways genes matter to you

Posted on by Charlie

Genetics research continues to inform disease treatment and prevention in new and previously unimagined ways—from the completion of the international Human Genome Project in 2003, to the present day federal…

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5 practical fatigue-fighting strategies

Posted on by Charlie

Fatigue is an everyday reality for many with chronic illness. While the best remedy will vary from person to person, here are some practical fatigue-fighting strategies proven to impact energy…

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Staying Covered: Health care open enrollment

Posted on by Charlie

Fall is the season of change and, thus, the perfect backdrop for the annual open enrollment periods for both Medicare and the individual insurance market. During this limited time period…

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Genetic information and SSA

Posted on by CVCeditor

Genetic tests are still a relatively new phenomenon. They can help with treatment, family planning, health decisions and more. In Social Security Administration (SSA) disability applications, genetic information is increasingly…

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Genetic Alliance

Posted on by CVCeditor

Q&A with President and CEO Sharon F. Terry When did Genetic Alliance get started? What are some things Genetic Alliance has accomplished since then? Founded in 1986, Genetic Alliance began…

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5-step disability approval process

Posted on by Charlie

Once you submit a disability application to the Social Security Administration (SSA) for review, SSA makes a determination through a five-step sequential disability approval process. You must show the following…

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Close up: Greg Smiley, Board of Directors

Posted on by Charlie

I have been fortunate to work for the joint United Nations program on HIV/AIDS (UNAIDS) for the past nine years. UNAIDS unites the efforts of 11 UN organizations and works closely…

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How to create your own support system

Posted on by Charlie

Not everyone facing a chronic illness has a built-in support system. But finding community of some sort will ease the stress of disease management and lessen the isolation that can…

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Coping with sleep apnea

Posted on by CVCeditor

About 18 million U.S. adults have sleep apnea, according to the National Sleep Foundation, and researchers believe many more never seek a diagnosis. The most common type, obstructive sleep apnea…

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Five thoughts most caregivers have at some point

Posted on by Charlie

1. “I don’t have time/am too stressed/can’t afford to worry about my own health.” When a loved one is experiencing debilitating health issues, your own health concerns can easily seem…

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Infantile spasms at a glance

Posted on by CVCeditor
infantile spasms

Learn about infantile spasms with this infographic. This “at a glance” infographic on infantile spasms first ran in the fall 2016 issue of Community magazine.

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Stress relief when you’re chronically ill

Posted on by Kelli Yoder

Finding stress relief when you’re chronically ill is beneficial not only for momentary peace of mind, but also for its potential to improve your long-term health. Chronic illness seems to…

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In your words: James Funk

Posted on by CVCeditor

James Funk describes how narcolepsy changed his life—but didn’t change him.  My journey with narcolepsy started in a pretty strange way: arguments with my wife. Now, when you have been in…

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The secret to perfect grab-and-go lunches

Posted on by CVCeditor

According to the Harvard School of Public Health nutrition guidelines, the Healthy Eating Plate, a balanced meal is made up of four basic things: a quarter proteins, a quarter whole…

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Walking with a purpose

Posted on by CVCeditor

80-year-old Don Stevenson has walked 4,000 miles, raising funds and awareness for pulmonary hypertension. Last summer, 79-year-old Don Stevenson trekked 3,000 miles from Auburn, Wash., to Silver Spring, Md., to…

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