Category Archives: Featured

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Raising awareness for chronic illness from home

Posted on by Kelli Yoder

If you have a chronic illness, you know just how important it is to help more people understand how common and life-changing long-term sickness is. But you also might not…

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Close Up: Nellie Capehart

Posted on by CVCeditor

I have been married for close to six years, to a loving and supportive husband and we have two bright and beautiful little girls under the age of 4 who…

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At a glance: Factor XIII

Posted on by CVCeditor

The body makes 13 blood-clotting factors and if any are deficient, blood doesn’t clot properly and a bleeding disorder results. The Factor XIII protein stabilizes blood clot formation—without the protein,…

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Faith and hope in life with Phelan-McDermid syndrome

Posted on by Kelli Yoder

Jodi Frunzi’s 16-year-old son, Michael, loves making friends and talking on the phone. She describes his life with Phelan-McDermid syndrome. When our son Michael was 1 year old, doctors asked…

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A few simple ways to practice gratitude

Posted on by Kelli Yoder

Expressing or meditating on gratitude when you have a chronic illness can improve your wellbeing, according to a growing body of research. While it might not come easily or naturally,…

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Buckle up and keep going with HD

Posted on by Kelli Yoder

J. Daniel Miller was diagnosed with Huntington’s disease when he was 21. No one in his family had heard of the disease. When I was in middle school, I was…

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5 free apps for managing chronic illness

Posted on by Kelli Yoder
free apps for managing chronic illness

Apps have great potential for making life with chronic illness a little easier. But finding the ones that work well for your needs can be difficult. To help, we compiled a…

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Healing attitude in PH

Posted on by CVCeditor

Lisa Skeeters Lisa Skeeters explains how a close-knit group of friends is the best medicine for her pulmonary hypertension. I was born with a congenital heart problem, tetralogy of fallot…

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What to expect after an SSA disability approval

Posted on by CVCeditor
after disability approval

We designed the first three Legal Corner installments this year (found in the Spring, Summer and Fall issues) to walk you through the Social Security Administration (SSA) disability application process….

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Help from a diagnosis

Posted on by CVCeditor

A doctor finally diagnosed Michael Guerra with complex partial seizures in his 50s, after he’d had seizures since age 11. As a result, he found a treatment that works. When…

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Body image and chronic illness

Posted on by Kelli Yoder

If you have a chronic illness, you already know that one of the many challenges you face is maintaining a healthy body image. Chronic illness can affect body image in…

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Finding a new normal with narcolepsy

Posted on by Kelli Yoder

Sharon Castellano Torledsky shares her decades-long journey coming to terms with narcolepsy Most of my long-term friends and family still think of me the way I was before narcolepsy. I…

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Healing waters: Hope after 22 years homebound

Posted on by Kelli Yoder
dysautonomia

Lynn Adams found a reason to hope after 22 years homebound with orthostatic hypotension, the main symptom of dysautonomia I am 55 years old and for 22 years I have had orthostatic hypotension…

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Chronic illness around the holidays

Posted on by Kelli Yoder

When you’re chronically ill, you might look forward to the holiday season, but also experience feelings of apprehension, anxiety or grief. You aren’t alone. One of the best things you…

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Q&A: Holiday health strategies

Posted on by Kelli Yoder

Sonya Angelone is a registered dietitian nutritionist and an Academy of Nutrition and Dietetics spokesperson. She is the owner of a nutrition consulting firm and is a certified LEAP (lifestyle,…

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