2017 Assistance Reapplication Status

At this time, CVC’s Pulmonary Hypertension and Narcolepsy funds are fully allocated and we are not able to accept applications. Please be aware funds may reopen. Click here to check fund statuses.

Category Archives: Featured

Featured Posts for the Slider

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Recognizing anxiety in chronic illness

Posted on by CVCeditor

Change is often frightening, and being diagnosed with a chronic illness is a particularly scary change. Dreams and aspirations are shattered or altered. Thoughts of financial difficulties ensue. Some dread…

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2017 reapplications — How to contact us

Posted on by Charlie

Caring Voice Coalition, Inc. (CVC) recently began sending out letters regarding the process of applying for 2017 assistance. Please review your “2017 Assistance Update” letter carefully to ensure the fund…

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A slight change in pace

Posted on by CVCeditor

Betty Washington describes the impact of sarcoidosis and pulmonary hypertension on her life—and how she stays strong by surrounding herself with positivity. I worked for 33 years as a police officer,…

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A personal connection

Posted on by CVCeditor
genetic counselor

In the Winter 2012 Community, Jessica Jackson shared her experience as a secondary caretaker for her mother, who was working toward a lung transplant. Jackson, now a genetic counselor, updates…

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Close up: Sonia Hemphill

Posted on by CVCeditor

I love helping people. So I feel very connected to the purpose of Caring Voice Coalition (CVC). It is an awesome feeling to, every day, be able to say, “We’re here…

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At a glance: Bile acid deficiencies

Posted on by CVCeditor
bile acid

Bile acid deficiencies: Any disease caused by a genetic error in one of 17 enzymes that produce bile acids, resulting in defective bile acid creation. The body needs bile acids…

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A guide to NIH resources

Posted on by CVCeditor

As the nation’s medical research body, the National Institutes of Health (NIH) is a wealth of information—so much information that knowing what’s available can be a challenge. Let these highlights…

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Social Security’s new Huntington’s disease listing

Posted on by CVCeditor

New Social Security Administration (SSA) disability requirements for all neurological disorders, including Huntington’s disease (HD), went into effect on Sept. 29, 2016. The requirements are found in SSA’s Listing of Impairments….

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Q&A: Pulmonary Hypertension Association

Posted on by CVCeditor

Q & A with newly appointed Pulmonary Hypertension Association president and CEO Brad A. Wong   What is the Pulmonary Hypertension Association, and what services does it provide? The Pulmonary…

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8 free apps to manage anxiety and depression

Posted on by CVCeditor

Using an app to manage anxiety and depression can offer important benefits, according to recent research. Because cognitive behavioral therapy (CBT) is a long-proven method of treatment for mood disorders,…

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Inheritance patterns

Posted on by CVCeditor

Certain diseases are caused by a single gene mutation received from one or both parents before birth. Knowing the inheritance patterns of illnesses that appear in your family can help…

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Four ways genes matter to you

Posted on by CVCeditor

Genetics research continues to inform disease treatment and prevention in new and previously unimagined ways—from the completion of the international Human Genome Project in 2003, to the present day federal…

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5 practical fatigue-fighting strategies

Posted on by CVCeditor

Fatigue is an everyday reality for many with chronic illness. While the best remedy will vary from person to person, here are some practical fatigue-fighting strategies proven to impact energy…

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Staying Covered: Health care open enrollment

Posted on by CVCeditor

Fall is the season of change and, thus, the perfect backdrop for the annual open enrollment periods for both Medicare and the individual insurance market. During this limited time period…

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Genetic information and SSA

Posted on by CVCeditor

Genetic tests are still a relatively new phenomenon. They can help with treatment, family planning, health decisions and more. In Social Security Administration (SSA) disability applications, genetic information is increasingly…

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