Helpful resources

Financial resources by diagnosis

Click on a disease name to view a list of related resources. To save time when contacting the resources below, have ready a list of all your diagnoses and the names of any medications for which you are seeking assistance.

National Organization for Rare Disorders

(877) 291-7805
https://rarediseases.org/

Epilepsy Foundation

Travel assistance and respite care only.
(800) 332-1000
https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance

Josh Provides Epilepsy Assistance Foundation

(800) 706-2740
http://www.joshprovides.org/

The Assistance Fund

(855) 359-0339
https://tafcares.org/

Patient Access Network Foundation

(866) 316-7263
http://www.panfoundation.org/

HealthWell Foundation

(800) 675-8416
https://www.healthwellfoundation.org/

National Organization for Rare Disorders

(877) 241-7220
https://rarediseases.org/

Lymphoma Research Foundation Patient Aid Grant Program

(800) 500-9976
http://www.lymphoma.org/site/pp.asp?c=bkLTKaOQLmK8E&b=6300127

Leukemia & Lymphoma Society - LLS Co-Pay Assistance Program

(877) 557-2672
http://www.lls.org/support/financial-support

Patient Services, Inc.

(800) 366-7741
https://www.patientservicesinc.org/

Hemophilia Federation of America - Helping Hands Program

(800) 230-9797
http://www.hemophiliafed.org/programs/helping-hands/

Colburn-Keenan Foundation, Inc.

(800) 966-2431
http://www.colkeen.org/

National Gaucher Foundation - CARE Program

(866) 346-8176
https://www.gaucherdisease.org/financial-support/care-program/

The Assistance Fund

(844) 294-6406
https://tafcares.org/

National Organization for Rare Disorders

(855) 864-4019
http://rarediseases.org/

Patient Access Network Foundation

(866) 316-7263
http://www.panfoundation.org/

Patient Services, Inc.

(800) 366-7741
https://www.patientservicesinc.org/

National Organization for Rare Disorders

(855) 864-4027
http://rarediseases.org/

HealthWell Foundation

(800) 675-8416
https://www.healthwellfoundation.org/

Huntington's Disease Assistance Fund

Fund available only to residents of Florida.
(561) 921-5746
http://hdaf.org/about/

Patient Services Inc.

(800) 366-7741
https://www.patientservicesinc.org/

The Assistance Fund

(844) 762-9237
https://tafcares.org/

Epilepsy Foundation

Travel assistance and respite care only.
(800) 332-1000
https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance

Josh Provides Epilepsy Assistance Foundation

(800) 706-2740
http://www.joshprovides.org/

National Organization for Rare Disorders

(855) 864-4028
http://rarediseases.org/

Epilepsy Foundation

Travel assistance and respite care only.
(800) 332-1000
https://www.epilepsy.com/living-epilepsy/247-helpline/patient-assistance

Josh Provides Epilepsy Assistance Foundation

(800) 706-2740
http://www.joshprovides.org/

The Assistance Fund

(855) 359-0339
https://tafcares.org/

National Organization for Rare Disorders

(855) 202-5826
http://rarediseases.org/

The Assistance Fund

(855) 845-3663
https://tafcares.org/

HealthWell Foundation

(800) 675-8416
https://www.healthwellfoundation.org/

The Assistance Fund

(855) 421-4608
https://tafcares.org/

Patient Access Network Foundation

(866) 316-7263
https://panfoundation.org/

Patient Services Inc.

(800) 366-7741
https://www.patientservicesinc.org/

Patient Advocate Foundation

(866) 512-3861
https://www.copays.org/

The Assistance Fund

(855) 649-8623
https://tafcares.org/

Patient Access Network Foundation

(866) 316-7263
https://panfoundation.org

Good Days

(877) 968-7233
http://www.mygooddays.org

Patient Services, Inc.

(800) 366-7741
https://www.patientservicesinc.org/

Good Days

(877) 968-7233
http://www.mygooddays.org

Patient Access Network Foundation

(866) 316-7263
https://panfoundation.org/

Hemophilia Federation of America - Helping Hands Program

(800) 230-9797
http://www.hemophiliafed.org/programs/helping-hands/

General resources

Click on a category to view a list of related resources.

These organizations provide education, advocacy and support to specific patient communities. They typically do not provide direct financial assistance themselves but instead offer resources, emotional support communities, and information for living with your diagnosis.

Cushing’s Support & Research Foundation

https://csrf.net/

Cutaneous Lymphoma Foundation

(248) 644-9014
http://www.clfoundation.org/

Epilepsy Foundation

(800) 332-1000
http://www.epilepsy.com/

Hemophilia Federation of America

(800) 230-9797
http://www.hemophiliafed.org/

Huntington's Disease Society of America

(800) 345-4372
http://www.hdsa.org/

Huntington's Disease Youth Organization

http://www.hdyo.org/

Lennox-Gastaut Foundation

(718) 374-3800
http://www.lgsfoundation.org/

National Hemophilia Foundation

(212) 328-3700
http://www.hemophilia.org/

National Gaucher Foundation

(800) 504-3189
http://www.gaucherdisease.org/

National Hemophilia Foundation

(212) 328-3700
http://www.hemophilia.org/

Narcolepsy Network

(888) 292-6522
http://www.narcolepsynetwork.org/

Phelan-McDermid Syndrome Foundation

(941) 485-8000
http://www.pmsf.org/

Pulmonary Hypertension Association

(301) 565-3004
http://www.phassociation.org/

Wake Up Narcolepsy

(978) 751-3693
http://www.wakeupnarcolepsy.org/

The Assistance Fund

(855) 845-3663
http://www.tafcares.org/

Good Days

(877) 968-7233
http://www.mygooddays.org/

The HealthWell Foundation

(800) 675-8416
http://www.healthwellfoundation.org/

National Organization for Rare Disorders

(800) 999-6673
http://www.rarediseases.org/

Patient Access Network Foundation

(866) 316-7263
http://www.panfoundation.org/

Patient Advocate Foundation

(866) 512-3861
http://www.copays.org/

Patient Services, Inc.

(800) 366-7741
http://www.patientservicesinc.org/

Federal, state and local governments may offer public assistance to people who meet all eligibility requirements. These programs assist low-income, disabled, senior or minor individuals. Please apply to the applicable agency directly.

BenefitsCheckUp

(571) 527-3900
https://www.benefitscheckup.org/

Low Income Home Energy Assistance Program

https://www.acf.hhs.gov/ocs/programs/liheap

Medicaid

(877) 267-2323
https://www.medicaid.gov/

Medicare

(800) 633-4227
https://www.medicare.gov/

National Institutes of Health

https://www.nih.gov/

Social Security Administration

(800) 772-1213
https://www.ssa.gov/

GlobalGenes

(949) 248-7273
https://globalgenes.org/

GoodRx

(855) 268-2822
http://goodrx.com/

Modest Needs

(844) 667-3776
https://www.modestneeds.org/

NeedyMeds Drug Discount Card

(800) 503-6897
http://www.needymeds.org/

Partnership for Prescription Assistance

(888) 477-2669
https://www.pparx.org/

Rx Outreach

(888) 796-1234
http://rxoutreach.org/

United Way 2-1-1

211
http://www.211.org/