We’re partnering with The Mighty

Posted on April 20th, 2017

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a partner page on The Mighty and appear…

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Staying well while caregiving

Posted on April 18th, 2017

Many believe family caregiving comes at a major cost to your health—but the truth isn’t so simple. To be sure, caregiving isn’t an easy job. It is often physically, mentally,…

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Tips on asking for help

Posted on April 14th, 2017

Asking for help is hard for most people. We might worry about being a burden or that we’ll end up feeling indebted to someone. Other times we fear vulnerability, judgment…

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HD caregiver in training

Posted on April 11th, 2017
greg lisa HD

Greg Compton is the primary caregiver for his wife, Lisa. She has Huntington’s disease. I don’t see myself as a caregiver, at least not yet. My wife Lisa’s Huntington’s disease…

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Writing prompts for coping with chronic illness

Posted on April 6th, 2017

A little reflective writing can have a transformative impact in chronic illness. Maybe you need to work something out or your mind feels a little chaotic. Perhaps you just need a…

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America’s Caregivers

Posted on April 4th, 2017

Statistics come from a 2015 comprehensive research report by the AARP Public Policy Institute and the National Alliance for Caregiving surveying more than 1,200 caregivers, in addition to one of…

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A new look for our magazine

Posted on March 24th, 2017

Your Community magazine reading experience is new and improved—no matter your device. Community, Caring Voice Coalition’s quarterly magazine for patients, caregivers, health professionals and advocates, released its first issue of 2017…

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Making tough medical decisions with chronic illness

Posted on March 17th, 2017

Living with a chronic illness means making regular and sometimes tough medical decisions. While some conditions require a clear treatment plan with no alternative options, other times your doctor will…

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Cooking with chronic illness: Four trends to try

Posted on March 10th, 2017

When you have a chronic illness, cooking or thinking about cooking often requires more energy than you can muster. Yet making sure you eat balanced and healthy meals is all…

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Great podcasts for chronic illness

Posted on March 3rd, 2017

Podcasts are a largely untapped resource for most people—but they could be especially useful to people with chronic illness. They’re a great option when you don’t have a lot of…

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15 encouraging quotes for your chronic illness journey

Posted on February 23rd, 2017

Healing “These pains you feel are messengers. Listen to them.” –Rumi, The Essential Rumi   “Some people see scars, and it is wounding they remember. To me they are proof…

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Share your rare disease story

Posted on February 16th, 2017

Telling your rare disease story can positively impact so many aspects of a journey often fraught with anxiety. You can simultaneously raise awareness for your condition while connecting with a…

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Morning routine with chronic illness

Posted on February 9th, 2017

Chronic illness can be a bit of a roller coaster. Many people talk about having times of flare ups followed by times of relative wellness. But according to research, establishing healthy routines…

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Prepared patient checklist

Posted on February 7th, 2017

When living with chronic illness, especially a rare and life-threatening one, doctor visits are frequent and part of the routine. To be your best advocate, you must prepare for your…

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Raising awareness for chronic illness from home

Posted on February 2nd, 2017

If you have a chronic illness, you know just how important it is to help more people understand how common and life-changing long-term sickness is. But you also might not…

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