Memorial Day

Caring Voice Coalition will be closed Monday, May 29 in observance of Memorial day.
We will reopen on Tuesday, May 30 at 9a.m. ET.

Press Inquiries

Please send all media inquiries to

To learn more about the work CVC does and the patients we support, please check out the links below:


Community – A quarterly magazine for caregivers, patients and the medical community.


CVC-e newsletter – Health tips and rare disease news sent to your email.

Find Caring Voice on social media at: